This bill extends HIPAA-like privacy protections to health data collected by apps, wearables, and other non-HIPAA companies. People would get new rights over their data and must receive clear warnings when their health information leaves HIPAA's protection. HHS must also write guidance on AI use of health data and set national de-identification standards.
Modern Action explains legislation in plain English, helps you choose whether to support, oppose, or ask for changes, and drafts a message tied to the bill, your stance, and the elected officials who can act on it.
Health Information Privacy Reform Act is a Senate bill in committee. The latest recorded action: Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Latest action on S. 3097: Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Who this affects: This bill touches nearly everyone who uses a health or wellness app, wearable device, or digital health platform, and it places new obligations on a broad range of technology companies. Traditional HIPAA-covered providers and health plans are affected more narrowly, mainly through the changes to the patient right-of-access process.
Why this matters: Most Americans now generate health-related data outside of traditional medical settings — through fitness trackers, period-tracking apps, mental health platforms, and diet tools. HIPAA does not cover these products, leaving a major gap that companies have exploited to collect, sell, and share sensitive health information with few restrictions. This bill is an attempt to close that gap using a HIPAA-style framework people already understand, while also updating rules for AI use of health data and setting clearer standards for de-identification.
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Officially: Health Information Privacy Reform Act
This bill extends HIPAA-like privacy protections to health data collected by apps, wearables, and other non-HIPAA companies. People would get new rights over their data and must receive clear warnings when their health information leaves HIPAA's protection. HHS must also write guidance on AI use of health data and set national de-identification standards.
Use this page to support, oppose, or ask Congress to amend S3097. Modern Action explains Health Information Privacy Reform Act in plain English, helps identify the right senators or representative, and drafts a bill-specific message you can edit and send.
Where it stands
Sitting in Health
No vote scheduled. Constituent contact is what moves bills out of committee.
↓ Why your message matters here
This bill is sitting in committee with no scheduled vote — which means a small number of constituent messages can decide whether it moves forward or quietly dies.
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The debate
Where this bill is in the process
Introduced
Introduced in Senate
Senate Committee
Under Senate committee consideration
Latest: Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (11/4/2025)
Senate Floor Vote
Voted on by Senate
Passed Senate
Approved by Senate
House Review
Sent to House for consideration
Passed Both Chambers
Approved by both House and Senate
Signed into Law
Signed by the President
For more detail
Choose one clear position: support, oppose, or amend. Then pick any reasons or personal context you want included. Modern Action uses that input and the bill context to draft a message you can edit and send.
Congressional offices prioritize messages from their own constituents. Modern Action uses your address to route the drafted message to your senators when that is the most relevant target for this bill.
The draft includes the bill number, your position, the reasons you selected, any personal context you added, and a direct ask such as voting yes, voting no, cosponsoring, opposing, or seeking changes. You stay in control because you can edit the message before sending.
This page gives you an opportunity to support, oppose, or ask for changes to Health Information Privacy Reform Act, then contact the elected officials who can act. Modern Action drafts the message from your position and the reasons you select.
Modern Action keeps the action tied to the bill itself: what it would do, where it is in the process (committee), which office can still act, and what ask belongs in the message.
You are not starting from a blank form. Modern Action drafts the message around S3097, your stance, and the reasons you choose, then lets you edit and send when ready.