NIH would run a federal Down syndrome research program called the INCLUDE Project. It would support studies, training, clinical trials, and reports to Congress every two years.
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DeOndra Dixon INCLUDE Project Act of 2025 is a Senate bill in committee. The latest recorded action: Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Latest action on S. 1838: Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Who this affects: This bill mainly affects people with Down syndrome and their families. It could shape what researchers study, what clinical trials include, and what evidence doctors can use in care. It also affects NIH, outside researchers, grant recipients, and members of Congress who oversee federal health research.
Why this matters: People with Down syndrome often face health risks that are not fully understood, and this bill would push the federal government to study those risks in a focused way. It could help doctors learn more about care across a person’s life. It may also lead to better trials and stronger evidence for treatments. Some findings could help people without Down syndrome who have similar conditions, but that result is not guaranteed.
You do not have to start with a blank letter. Modern Action turns the bill, your position, and the relevant congressional context into a message you can edit and send. The goal is to make contacting Congress clear, specific, and useful without forcing you to parse bill text or figure out the right office on your own.
